Why I Can't Type or Blog or Email and It Doesn't Go Away #1

Amazon.com: Migraine Auras: When the Visual World Fails (9781556436192): Richard Grossinger: Books

Dear Friends and Loved Ones Near and Dear to Us,

You are all so wonderful, kind, and concerned about the effect chronic daily migraines

have on our life here. They are debilitating, pure and simple.

But, we have never been able to answer the perennial question:

"WHY DON'T THEY GO AWAY? ISN'T THERE ANYTHING ELSE THAT CAN BE DONE?'

As astonishing as it may seem, so far, the answer remains: We really don't know. We have not

found a way yet. And, combined with two severe concussions and traumatic brain injury, it has apparently

become too complex for any neurologists we have consulted to answer, either.

We know you love us and we struggle with frustration and grief as we slowly slip out of  Cyberspace

because the cost we pay in pain for using the computer grows costlier over time. We don't know why.
The moving UMakeMeScream, blinking things, inability to co-ordinate finger movements with keyboard, screen, and a brain orbiting Jupiter, oblivious to the necessity for it to return Home so we can function...?

We do not know. We have not given up & nevah will! Black Sheeps ain't quitters, we tell ya!
We still research the subject and avoid known triggers as much as possible (sometimes it is not possible)
take our medication as prescribed once the aura warns us or - if it doesn't, we head straight into the dark, quiet VOID BENEATH ICE PACKS with earplugs when suddenly Blindsided with SHOCK AND AWE: the treatment is somewhat more difficult at times and they are unpredictable.

Today's posts are a meager, pathetic attempt to share with you our increasingly frequent, longer

absences...these headaches & accompanying array of other Disney Rides through the Little Shop of
Horrors are not occasional: They are chronic, nearly daily.

We are not disappearing but we are less frequent and more unpredictable. This does NOT mean we
don't want to hear from you or receive photographs for the MOD Blog: we simply ask for your patience
and understanding because there will be times when we can respond enthusiastically and there will be times
we will be Horking and trying to figure out how to eat and hydrate ourselves, overcome by nausea, dizziness,
and vertigo. We DO SO MUCH want to continue receiving your emails, as long as you understand we cannot necessarily return them in a timely way...and it is not personal, it it CUZ WE BE HORKIN' AND
PULLING OUR HAIR OUT IN PAIN AND FRUSTRATION! (just that widdle thing, is all.)

We will Blog, email, and ScreamWithU as much as possible! Just "revamped."

Our goal is to continue short fly-by's on UScream, pop in sometime during Molly Movie Night, and do what we can, as much as we can, as often as we can. But we are sick. And outting ourselves even though you already know what we have been reluctant to accept: that this is interfering with our Fundamental MODhood!

HISS! STOMP! FLAP! HOP! WING-WHACK! HORK! STOMP-FLAP-HOP-HORK!

We dearly love, miss, and cherish each and every one of You: please know that we are more frustrated than you could possibly be, yet have no answers, for ourselves or for you. We just take life one day, one hour, one minute, one nano-second at a time...until it all dissolves into the only thing that really DOES matter: love.

Perhaps the books posted here (once we order and read them) will provide some clues we have missed.
Or at least validate the difference between chronic daily migraines, auras & visual disturbances, cognitive dysfunction, and other pleasantries which we occasionally mistake for...oh, we dunno, insanity?! (Which is
not to suggest they can't co-exist! LOL!)

Love you: we'll see you when we see you, we'll Blog when we can or simply MUST because we can't hold it in anymore, and we'll jump onto UMakeMeScream every chance we get to vex, annoy, tease, perplex, and confoozle you! Please don't let us stop hearing FROM you!

(((Horks & Hisses & GuineaPigKisses)))

DON'T GIVE UP ON US,
KEEP WRITING & SENDING YOUR PICS, WHETHER OR NOT WE CAN WRITE BACK, WE WILL FIND A WAY!

love,

Chana and Guinea Pig Team Six, MOD Division of the Black Sheep Nation