"Who can know what effect our smallest acts of kindness may have on others? Perhaps the most important contribution of Mother Teresa, who serves the most destitute and neglected, is that she instills in those who have been abandoned the realization that they too are loved." ~ Sant Darshan Singh Ji Maharaj ~ Panda Pig's Peace Sanctuary exists so that abandoned, neglected, sick, and dying guinea pigs may experience that they, too, are cherished and loved!
Panda's First Smile
Monday, May 23, 2011
Why I Can't Type or Blog or Email and It Doesn't Go Away #1
Labels:
open letter to loved ones
Amazon.com: Migraine Auras: When the Visual World Fails (9781556436192): Richard Grossinger: Books
Dear Friends and Loved Ones Near and Dear to Us,
You are all so wonderful, kind, and concerned about the effect chronic daily migraines
have on our life here. They are debilitating, pure and simple.
But, we have never been able to answer the perennial question:
"WHY DON'T THEY GO AWAY? ISN'T THERE ANYTHING ELSE THAT CAN BE DONE?'
As astonishing as it may seem, so far, the answer remains: We really don't know. We have not
found a way yet. And, combined with two severe concussions and traumatic brain injury, it has apparently
become too complex for any neurologists we have consulted to answer, either.
We know you love us and we struggle with frustration and grief as we slowly slip out of Cyberspace
because the cost we pay in pain for using the computer grows costlier over time. We don't know why.
The moving UMakeMeScream, blinking things, inability to co-ordinate finger movements with keyboard, screen, and a brain orbiting Jupiter, oblivious to the necessity for it to return Home so we can function...?
The moving UMakeMeScream, blinking things, inability to co-ordinate finger movements with keyboard, screen, and a brain orbiting Jupiter, oblivious to the necessity for it to return Home so we can function...?
We do not know. We have not given up & nevah will! Black Sheeps ain't quitters, we tell ya!
We still research the subject and avoid known triggers as much as possible (sometimes it is not possible)
take our medication as prescribed once the aura warns us or - if it doesn't, we head straight into the dark, quiet VOID BENEATH ICE PACKS with earplugs when suddenly Blindsided with SHOCK AND AWE: the treatment is somewhat more difficult at times and they are unpredictable.
We still research the subject and avoid known triggers as much as possible (sometimes it is not possible)
take our medication as prescribed once the aura warns us or - if it doesn't, we head straight into the dark, quiet VOID BENEATH ICE PACKS with earplugs when suddenly Blindsided with SHOCK AND AWE: the treatment is somewhat more difficult at times and they are unpredictable.
Today's posts are a meager, pathetic attempt to share with you our increasingly frequent, longer
absences...these headaches & accompanying array of other Disney Rides through the Little Shop of
Horrors are not occasional: They are chronic, nearly daily.
Horrors are not occasional: They are chronic, nearly daily.
We are not disappearing but we are less frequent and more unpredictable. This does NOT mean we
don't want to hear from you or receive photographs for the MOD Blog: we simply ask for your patience
and understanding because there will be times when we can respond enthusiastically and there will be times
we will be Horking and trying to figure out how to eat and hydrate ourselves, overcome by nausea, dizziness,
and vertigo. We DO SO MUCH want to continue receiving your emails, as long as you understand we cannot necessarily return them in a timely way...and it is not personal, it it CUZ WE BE HORKIN' AND
PULLING OUR HAIR OUT IN PAIN AND FRUSTRATION! (just that widdle thing, is all.)
don't want to hear from you or receive photographs for the MOD Blog: we simply ask for your patience
and understanding because there will be times when we can respond enthusiastically and there will be times
we will be Horking and trying to figure out how to eat and hydrate ourselves, overcome by nausea, dizziness,
and vertigo. We DO SO MUCH want to continue receiving your emails, as long as you understand we cannot necessarily return them in a timely way...and it is not personal, it it CUZ WE BE HORKIN' AND
PULLING OUR HAIR OUT IN PAIN AND FRUSTRATION! (just that widdle thing, is all.)
We will Blog, email, and ScreamWithU as much as possible! Just "revamped."
Our goal is to continue short fly-by's on UScream, pop in sometime during Molly Movie Night, and do what we can, as much as we can, as often as we can. But we are sick. And outting ourselves even though you already know what we have been reluctant to accept: that this is interfering with our Fundamental MODhood!
HISS! STOMP! FLAP! HOP! WING-WHACK! HORK! STOMP-FLAP-HOP-HORK!
HISS! STOMP! FLAP! HOP! WING-WHACK! HORK! STOMP-FLAP-HOP-HORK!
We dearly love, miss, and cherish each and every one of You: please know that we are more frustrated than you could possibly be, yet have no answers, for ourselves or for you. We just take life one day, one hour, one minute, one nano-second at a time...until it all dissolves into the only thing that really DOES matter: love.
Perhaps the books posted here (once we order and read them) will provide some clues we have missed.
Or at least validate the difference between chronic daily migraines, auras & visual disturbances, cognitive dysfunction, and other pleasantries which we occasionally mistake for...oh, we dunno, insanity?! (Which is
not to suggest they can't co-exist! LOL!)
Or at least validate the difference between chronic daily migraines, auras & visual disturbances, cognitive dysfunction, and other pleasantries which we occasionally mistake for...oh, we dunno, insanity?! (Which is
not to suggest they can't co-exist! LOL!)
Love you: we'll see you when we see you, we'll Blog when we can or simply MUST because we can't hold it in anymore, and we'll jump onto UMakeMeScream every chance we get to vex, annoy, tease, perplex, and confoozle you! Please don't let us stop hearing FROM you!
(((Horks & Hisses & GuineaPigKisses)))
DON'T GIVE UP ON US,
KEEP WRITING & SENDING YOUR PICS, WHETHER OR NOT WE CAN WRITE BACK, WE WILL FIND A WAY!
DON'T GIVE UP ON US,
KEEP WRITING & SENDING YOUR PICS, WHETHER OR NOT WE CAN WRITE BACK, WE WILL FIND A WAY!
love,
Chana and Guinea Pig Team Six, MOD Division of the Black Sheep Nation
HURTS
Labels:
headache bird
we sure want to play. we sure want to run around. we sure wish the bird would fly away so mom can let us out and we can all have fun doing what we does best: running, chasing, playing tag, discovering hidden treats, snatching our discoveries right
outta each others' mouths (hee-hee, dat definitely a FAVORITE!) getting our cages cleaned, our food bowls and water bowls
cleaned, enjoying fresh litter with a stack of yummy timothy hay...go 'way HeadacheBird, SHOO!
we suffer when mom gets sick and, frankly, we iz SICK O'DAT! c'mon, let's Par-TAY!#
outta each others' mouths (hee-hee, dat definitely a FAVORITE!) getting our cages cleaned, our food bowls and water bowls
cleaned, enjoying fresh litter with a stack of yummy timothy hay...go 'way HeadacheBird, SHOO!
we suffer when mom gets sick and, frankly, we iz SICK O'DAT! c'mon, let's Par-TAY!#
YOU HAVE TO CLICK ON THIS TO SEE DETAILS
Labels:
mom's migraine art
This is how a migraine feels from the Inside...there is a bird in the middle but it's too crowded to even find it. Like how a thought hides when mom's brain is Imploding/Exploding/WarpDrive: TOO fast: "Cap'n, the engines...they can't TAKE it..." so then Captain Kirk says "Warp 10, Scotty." And the dishes don't get done, mom's hair looks like she stuck her finger in an electric socket, and she can't figure out why she is eating a bowl of cereal with a writing pen instead of a spoon.# good times, ya.
Coconut Teaches Us BoyZ "Diplomacy"
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coconut KNOWS THINGS
What WILL mean much to mom is the sight of concern emanating from those (faux) wide, empathetic black eyes of hers, Coconut's expression of profound, sincere concern over mom's suffering, and the agony that witnessing mom's continuing migraine causes our liddle darlin' girl: As if mom's pain is her pain.
Mom ain't even gonna NOTICE that carrot Coconut secretly tryin' to protect wid this performance!
WHAT A PLAYA! WHO AMONGST US EVEN KNEW: COCONUT HAZ TALENT!
Would mom snatch that carrot outta Coconut's mouth the way she snatched our cantaloupe breakfast this morning?
NOtta CHANCE! If anything, she'll give Coconut EXTRA treats!
Hmmm...weThinks our Coconut is craftier, wilier, and more cunning than even we knew...she KNOWS THINGS,
THINGS WE MUST LEARN!
Hope - Our Deliverance - Hath Arrived where we least expected it! Quiet little Coconut, the most cunning amongst us?
WHO KNEW?
Hee-Hee, mom, we KNOWS NOW!
Mu-ah-Ha-HAAAAA!
MIGRAINE ART BOOK!
North Atlantic Books - Migraine Art
^^^Check this!^^^
A glimpse into how it feels from the Inside looking out...
Migraine Art « Katarina Thorsen Art Blog
Migraine Art « Katarina Thorsen Art Blog
^^^pretty cool^^^
Check out the pic of mom in the kitchen...
You'll know which one it is! We ALL KNOW
WHICH ONE IT IS!
BEST CURE FOR "OWIE-HEAD"
Labels:
headache cuddles
Sometimes it takes more than ice packs, meds, total darkness, complete silence, and staying totally OFF THE 'PUTER to comfort mom by day - ?WHAT? - of a migraine...we does our best! Squeaky ToyFriend compliments of Giz and GizMomma who know that nothin' beats cuddles, NUTTIN'!
( I really wants to chew on dat but she won't let me, sez it Very Special: so, gonna GIT THAT THING, GIT IT GOOD WHEN SHE AIN'T LOOKIN!)
later...
YumYum
(i mean she got ME, what she need that other thing for? ain't i prettier? YA! sigh...)
( I really wants to chew on dat but she won't let me, sez it Very Special: so, gonna GIT THAT THING, GIT IT GOOD WHEN SHE AIN'T LOOKIN!)
later...
YumYum
(i mean she got ME, what she need that other thing for? ain't i prettier? YA! sigh...)
Pretty, Pretty Migraine...
Labels:
aboriginal art
This is actually a contemporary painting created by Australian Aboriginal Artist Lucky Morton, one of mom's favorite art genres (along with Inuit/Cape Dorset printmaking, Molas from Panama, and Northwest Native American art) which somehow illustrates how her head feels right now...it hurts, pain looping, but some pretty in it... oddly, on the heels of a prolonged migraine lasting WAY too many days, she starts drawing like crazy, so SOMETHING GOOD happens during these times, we just don't exactly know WHAT! And, believe it or not, there is even a genre labeled "migraine art" because, apparently, this is not as uncommon or novel as we once thought. She is considered an
"Outsider Artist" (don't mean she draws outside, means she CRAZY if ya GOOGLE IT!) but each migraine leaves gifts when it departs, like an unwanted guest who enters uninvited, stays way too long, don't leave till it ready, yet drops off something we discover once pen meets paper in the "Great Aftermath." Ain't got no explanation, just wants her to feel better so we get treats, playtime, and cuddles! Plus, she in bed with a cantaloupe we know is meant for US and that is simply WRONG!
Once she feels better, we will express our displeasure with the cantaloupe having become her breakfast instead of ours. Until then, we just have to endure the moaning, the ice packs, whining,
and "i can't even get on the 'puter, and, OH BLOODY HORK, THINK I GONNA BARF!"
Thanks, mom, we needed that.
We so did NOT NEED THAT.
love,
long-suffering YumYum...sigh...an ethical breach of conduct
not only to STEAL our cantaloupe but then to, well, ya know!
HORKS & HISSES & CANTALOUPE KISSES!
"Outsider Artist" (don't mean she draws outside, means she CRAZY if ya GOOGLE IT!) but each migraine leaves gifts when it departs, like an unwanted guest who enters uninvited, stays way too long, don't leave till it ready, yet drops off something we discover once pen meets paper in the "Great Aftermath." Ain't got no explanation, just wants her to feel better so we get treats, playtime, and cuddles! Plus, she in bed with a cantaloupe we know is meant for US and that is simply WRONG!
Once she feels better, we will express our displeasure with the cantaloupe having become her breakfast instead of ours. Until then, we just have to endure the moaning, the ice packs, whining,
and "i can't even get on the 'puter, and, OH BLOODY HORK, THINK I GONNA BARF!"
Thanks, mom, we needed that.
We so did NOT NEED THAT.
love,
long-suffering YumYum...sigh...an ethical breach of conduct
not only to STEAL our cantaloupe but then to, well, ya know!
HORKS & HISSES & CANTALOUPE KISSES!
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